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Cochlear Implant Family Hearing Loss Inspiration

My inspiration

My inspiration

Be around the light bringers, the magic makers, the world shifters, the game shakers. They challenge you, break you open, uplift and expand you. They don’t let you play small with your life. These heartbeats are your people. These people are YOUR tribe.

— Danielle Doby

Not one part of this journey would be possible without my people. They are my inspiration, my cheerleaders, and my champions. They are family, friends, colleagues, neighbors, mentors. Their words of encouragement and excitement weave through this narrative and I am grateful for their willingness to be a part of my story.

My Mom, Anne Marie, is by far my closest collaborator and brightest inspiration. As mentioned, this writing project began my senior year at Villanova University. My challenge was my honors senior thesis. When considering what I wanted to investigate and document, I knew I wanted to capture my Mom’s recent cochlear implant experience and her process of regaining hearing. With the support of my advisor and family, I wrote about each step in Mom’s cochlear implant process – the final stages of profound hearing loss, discovering CI technology, meeting her surgeon and audiology team, numerous evaluations, family interviews, being activated, relearning sounds, and her deep faith and sense of hope throughout. This story was fascinating, as the technology was so new and the impact so great.

Life doled out a major twist for me that year. Two months before completing my thesis, I experienced my first severe hearing drop and found myself face-to-face with audiograms, showing my own personal loss. How would this unexpected and uninvited challenge impact my project as intended? How could I write exclusively about my Mom, pretending that I was unaffected? Ultimately, I chose to weave my story into the narrative. These quick, sometimes underdeveloped excerpts capture the details of my first audiology appointments and my emotions and wonderings about the future. And now, I am so glad I made that choice.

Recently, I have found comfort in rereading my words and reflections. When I think back to 2004, I remember a college senior, somewhat shaken but with resolve to write and rewrite and find exactly the right words to describe Mom’s brave and bold choices. Mom was generous with what she shared and her wise words rise to the surface. Rereading now, I find myself highlighting passages, saving sentences to recall later. I captured them 16 years ago knowing I might need them one day and that day is here.

A few weeks ago, I sent this note to my immediate family, close friends, and trusted colleagues:

Before too much time passes, I wanted to share some news. Over the past few months, I have been pursuing a cochlear implant evaluation. Recent audiologist appointments made it clear that it was time to take this step. I have been working with the team at Jefferson Hospital and through Auntie Mary’s connections to Advanced Bionics – all have been informative, supportive, and caring. The CI technology is incredible and the Jefferson team, who embrace Advanced Bionics, lead the field. Right before Christmas, I found out I am a candidate for an implant because of my “clarity” (how clearly I can hear the speech of others around me in all types of situations). This past month has been a time for CT scans, blood work, brain MRIs, and general observation of and reflection on how challenging it is to hear in many situations, personal and professional.  

So I set a date for surgery – March 19th! This will be an exciting journey – thrilling, a little daunting, and hopefully some humorous moments as we go. I look forward to sharing information, progress, and opportunities for you to support my process, as I learn and experience more.

The love and support that has followed helps affirm my decision to have a cochlear implant and work towards better hearing. I have found that positivity encourages me to share more about the process and what it is like to work and live each day with significant hearing challenges. It makes me feel a little lighter, more hopeful, more excited. The excitement I have witnessed in response to my decision is not unlike what Mom recounted when we wrote her story:

“Beyond the enthusiasm in our home, as more and more friends and family found out about my plans for a cochlear implant, the excitement started to build.  Everyone I told seemed thrilled, I think because they sensed my enthusiasm.”

When I told my sister Shannon I was thinking of blogging through my cochlear implant experience and also looking back at some of the excerpts from my thesis, she responded, “you have to do that and I will contribute!” Thinking about this blog’s opening quote about surrounding yourself with people who “don’t let you play small with your life” I can see the impact of these people, my people. My Aunt Mary’s late night texts encouraging me to connect with Advanced Bionics. My sisters’ phone calls asking about my research, encouraging me to keep pursuing appointments. Tim leading the kids in a parade around the first floor of our house when I made the decision to schedule surgery. A best friend correcting me about not being able to hear something – “you can’t hear it NOW but not for long!” And Mom’s example of what it looks like to have the courage and faith to make this choice.

So here it goes. Surrounded by my “light bringers, magic makers, world shifters, game shakers,” I embark on this journey and project – to revisit the stories written, document my own experiences, and make meaning in the connections.

One reply on “My inspiration”

Kate, I am so inspired by you! I am so glad you have decided to continue capturing this journey in writing. Me, I write like a lab report (remember our editing sessions?) but you always had a way with words. I can’t wait to hold your published book in my hands some day!

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